University of Rochester Medical Center Department of Neurology

Hereditary Ataxia Program
601 Elmwood Ave
Box 673
Rochester, NY 14642

Phone: (585) 341 – 7500
Alex Paciorkowski, M.D. Director of Hereditary Ataxia Program

Erika Augustine, MD
Neurologist and Movement Disorder Specialist

To schedule an appointment: (585) 341-7500
To learn more: 

National Ataxia Foundation

2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447-4752

Phone: 763-553-0020
Fax: 763-553-0167

The National Ataxia Foundation (NAF) is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
To learn more visit NAF WEBSITE:

National Institutes Of Health (NIH) – Rare Diseases Research

National Center for Advancing Translational Sciences (NCATS)
Office of Rare Diseases Research (ORDR)

To learn more about the important initiative to advance research as part of the Rare Diseases Act of 2002 --- go to the website link:

Ataxia Patient Registry

Coordination of Rare Diseases at Sanford – CoRDS 
A program based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.
 To learn more or become part of the registry click here CoRDS

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