The Rochester Ataxia Foundation was founded in 2011 by a local family to advance ataxia research and treatment for those affected by this rare neuro-genetic "orphan disease". After more than 25 years of witnessing the impact ataxia had on their siblings, with no family history, no testing to determine why, no treatments and no cure, the family set out to find answers in partnership by the medical and research communities. The course was set to advocate for those diagnosed with ataxia to find a cause and a cure!
Today, a group of dedicated community members donate their time and skills to serve as Board of Directors and carry out the mission of the Rochester Ataxia Foundation.
The Rochester Ataxia Foundation (RAF) is committed to raising the dollars necessary to engage research communities in seeking a better understanding of causes, and ultimately, a cure for, inherited ataxia.
The Rochester Ataxia Foundation will continue to advocate for improved diagnosis, care and treatment of individuals in the Rochester area and in the northeast United States and will work to raise public awareness of inherited ataxia.